What triggers your MdDS ?
Posted by admin in MDDS on 01 28th, 2009 | 5 responses
Hi guys,
I was wanting to know what triggers your MdDS ? as i was peering through an old pair of binoculars and when i looked away i was extremely dizzy and i wanted to you to share your experience and give us some of your thoughts on this issue ! as the site grows i will be posting more and more information but i have to say thank you to some great inspirational sites such as http://www.mddsfoundation.org/ and http://www.mdds.org.uk/ for their hard work and devotion to finding a cure and helping all us fellow sufferers.
Bass
5 Responses to “What triggers your MdDS ?”
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Mal de Debarquement Syndrome (or MdDS) is an imbalance or rocking/swaying sensation often both “felt” and “seen” by the sufferer that occurs after exposure to motion (most commonly after a sea cruise or a flight). Although other forms of travel have been known to trigger it.
Hi Bass,
Did you design this web site yourself? If so we are looking for someone to improve the looks of our www,mddsfoundation.org web site. Let me know if you’d be interested in working with us on this endeavour.
I found out I needed glasses 1,5 months after mdds started. I had perfect eyesight one year ago so thats strange, but can happen and doesnt have to be related to mdds…
Anyways I had a pretty hard time adjusting to the glasses. They made me dizzier and it looked like I was still wearing them when I took them of (i could still see the edges of the glasses)!
I have astigmatism so that makes things sorta shift if I turn my head. I have now adjusted and dont think I get more dizzy from them. I will buy contacts and see if that works better, but I look better in glasses
great site man, im impressed!
I have lots of triggers of my MdDS including elevators, fluorescent lights, blinking lights,buzy patterns and venetian blinds, and s/s worse on rainy days. The feeling that is worst to deal with is the intense pull of gravity on my higher days. I’ve only had a few days or eve’s when tired of real stumbling but most days my s/s are 5-6 and lower at 3-4 rarely (early am and weekends) 1-2. I feel better with neck support or firm back support.
Wheelchair, bike spokes in motion, crowded places trigger my MdDS. Love being driven around in the car but the after effect of getting out of the car makes it much worse for some reason
I also have Adult ADD and the Adderall make me more focused during the day and helps me concentrate so much better. Ask your Dr. about it because if I don’t take it I want to lie down all the time
It took me a few years to find out what exactly caused my MdDS, but elevators are the main reason. My symptoms have gotten worse over last five years. I have currently been in vestibular physical therapy for the past 4 months with no signs of improvement, but have not giving up hope. Spending a few days in a hotel and it can take up to six months to see an improvement on my symptoms. It’s been a live altering time and I’m hoping that there is more research done on this condition. My symptoms include extreme fatigue, trouble concentrating, slighty blurred vision and a feeling up movement (mostly when walking, not as bad when sitting still). I’m a male in my mid-thirties and most of the sites i’ve researched are directed to women in their 40’s and 50’s. I will keep you posted on my vestibular physical therapy and if there are any improvements.