Comments for MDDS HOPE - Mal De Debarquement Syndrome - Balance Disorder http://www.mddshope.com mdds mal de debarquement syndrome a balance disorder Wed, 10 Mar 2010 02:30:45 +0000 http://wordpress.org/?v=2.9 hourly 1 Comment on Case Study – Marla Cruise by Janice http://www.mddshope.com/2009/05/09/case-study-marla-cruise/comment-page-1/#comment-1532 Janice Wed, 10 Mar 2010 02:30:45 +0000 http://www.mddshope.com/?p=193#comment-1532 I have had previous problems upon returning from cruises. The first one in 2002 was bad, I got back and for three months I felt like I was walking outside of my body. I couldn't go to the gym, take a walk.....I was wobbling but no one else could see it. Dr. didn't really have an explanation for me except to tell me that some people live with this inner ear problem for years. My thought was, no way can I deal with this for years...it was horrible. I was tired all the time and just out of it. The next cruise was in 2007, I went through the same thing....it lasted about 2 months. So, I love cruising. We always get a balcony and when we get back home, I lay in bed and feel that feeling of when I drift off to sleep and wish I was still on board. I made myself stop doing this and the last three cruises have been fine for me. Thank god!!! I am heading out to a Med cruise this spring for 12 days (usually only do 7 in the Caribbean) and praying that I don't have any problems. Although I did not go through the extent of problems you went through, I can certainly sympathize with what you have been through. I have had previous problems upon returning from cruises. The first one in 2002 was bad, I got back and for three months I felt like I was walking outside of my body. I couldn’t go to the gym, take a walk…..I was wobbling but no one else could see it. Dr. didn’t really have an explanation for me except to tell me that some people live with this inner ear problem for years. My thought was, no way can I deal with this for years…it was horrible. I was tired all the time and just out of it. The next cruise was in 2007, I went through the same thing….it lasted about 2 months. So, I love cruising. We always get a balcony and when we get back home, I lay in bed and feel that feeling of when I drift off to sleep and wish I was still on board. I made myself stop doing this and the last three cruises have been fine for me. Thank god!!! I am heading out to a Med cruise this spring for 12 days (usually only do 7 in the Caribbean) and praying that I don’t have any problems. Although I did not go through the extent of problems you went through, I can certainly sympathize with what you have been through.

]]> Comment on Case Study – Marla Cruise by Tom Tyson http://www.mddshope.com/2009/05/09/case-study-marla-cruise/comment-page-1/#comment-1087 Tom Tyson Sat, 30 Jan 2010 21:29:21 +0000 http://www.mddshope.com/?p=193#comment-1087 Just found your blog while searching Bing. Just found your blog while searching Bing.

]]> Comment on Case Study – Marla Cruise by Gracia Culotta http://www.mddshope.com/2009/05/09/case-study-marla-cruise/comment-page-1/#comment-641 Gracia Culotta Sat, 12 Dec 2009 15:46:38 +0000 http://www.mddshope.com/?p=193#comment-641 Considerably, the post is really the best on this worthy topic. I agree with your conclusions and will thirstily look forward to your next updates. Saying thanks will not just be adequate, for the tremendous lucidity in your writing. I will immediately grab your rss feed to stay abreast of any updates. Solid work and much success in your business endeavors! Considerably, the post is really the best on this worthy topic. I agree with your conclusions and will thirstily look forward to your next updates. Saying thanks will not just be adequate, for the tremendous lucidity in your writing. I will immediately grab your rss feed to stay abreast of any updates. Solid work and much success in your business endeavors!

]]> Comment on What triggers your MdDS ? by Darin http://www.mddshope.com/2009/01/28/what-triggers-your-mdds/comment-page-1/#comment-550 Darin Mon, 23 Nov 2009 01:27:15 +0000 http://www.mddshope.com/?p=122#comment-550 It took me a few years to find out what exactly caused my MdDS, but elevators are the main reason. My symptoms have gotten worse over last five years. I have currently been in vestibular physical therapy for the past 4 months with no signs of improvement, but have not giving up hope. Spending a few days in a hotel and it can take up to six months to see an improvement on my symptoms. It's been a live altering time and I'm hoping that there is more research done on this condition. My symptoms include extreme fatigue, trouble concentrating, slighty blurred vision and a feeling up movement (mostly when walking, not as bad when sitting still). I'm a male in my mid-thirties and most of the sites i've researched are directed to women in their 40's and 50's. I will keep you posted on my vestibular physical therapy and if there are any improvements. It took me a few years to find out what exactly caused my MdDS, but elevators are the main reason. My symptoms have gotten worse over last five years. I have currently been in vestibular physical therapy for the past 4 months with no signs of improvement, but have not giving up hope. Spending a few days in a hotel and it can take up to six months to see an improvement on my symptoms. It’s been a live altering time and I’m hoping that there is more research done on this condition. My symptoms include extreme fatigue, trouble concentrating, slighty blurred vision and a feeling up movement (mostly when walking, not as bad when sitting still). I’m a male in my mid-thirties and most of the sites i’ve researched are directed to women in their 40’s and 50’s. I will keep you posted on my vestibular physical therapy and if there are any improvements.

]]> Comment on What triggers your MdDS ? by Jeanne http://www.mddshope.com/2009/01/28/what-triggers-your-mdds/comment-page-1/#comment-537 Jeanne Sat, 14 Nov 2009 20:16:55 +0000 http://www.mddshope.com/?p=122#comment-537 Wheelchair, bike spokes in motion, crowded places trigger my MdDS. Love being driven around in the car but the after effect of getting out of the car makes it much worse for some reason I also have Adult ADD and the Adderall make me more focused during the day and helps me concentrate so much better. Ask your Dr. about it because if I don't take it I want to lie down all the time Wheelchair, bike spokes in motion, crowded places trigger my MdDS. Love being driven around in the car but the after effect of getting out of the car makes it much worse for some reason

I also have Adult ADD and the Adderall make me more focused during the day and helps me concentrate so much better. Ask your Dr. about it because if I don’t take it I want to lie down all the time

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